My daughter was diagnosed by a blood test and therefore we are aware that she could develop it at any time through her life and so could her baby daughter (who was born Wednesday this week, on her due date).
My son was living in London at the time and he had two blood tests, which were both inconclusive so he was given a gastroscopy, which was negative. He was also tested for some reason, to see if he carried the Coeliac gene, which was a free test under the National Health.
The results of the genetic test was that he “is a carrier but does not (and will never have) Coeliac disease.”
I was recently volunteering at the New Zealand Coeliac Society stand at the gluten free and allergy show a few weeks ago in Auckland, and I happened to mention the above genetic test to someone and the results and this person said it was not possible to be a carrier but never develop Coeliac disease. I wonder how this person knows this?
I mentioned this to my son a few days ago and he was sure that is what the specialist had said and that he remembered phoning me straight after coming out of the specialist appointment to tell me his results, so he couldn’t have got it that wrong. He has since shifted back to New Zealand but thinks he has the specialist letter to verify what he was told. That will be interesting. I wonder what it will say.